Every dollar and minute spent in the attempt to eradicate brain tumors is worth it. May is Brain Tumor Awareness Month. Please spread the word!
#BTAM = #BTeAM in 2017
I am thirty years old and currently reside in Boston, MA. I was born and raised in a small town in Upstate New York, and I am a graduate of Hobart College. I have a beautiful wife Jen, and newborn son Odin who make every day of my life exciting. Only recently have I identified myself as a person living with a brain tumor (something I look to rectify in the near term), but I do not want that to be what defines me. I have tried to use this negative circumstance as something to write about and ultimately turn into a positive for myself and others.
Apologies for the delay in any recent posts to this blog. There has been a number of things happening in my day-to-day, but I intend on posting with some frequency in the coming months. As this week is “International Brain Tumor Awareness Week” for 2016, I felt it was an appropriate time to check-in. […]
One year after brain surgery. It has been awhile since I posted anything on this blog pertaining to my road to recovery following my brain surgery last November. In many ways, that is a resounding testament to the success of the operation. I’ve been feeling better a little bit at a time, and getting to […]
It has been some time since my last post. Suffice it to say, there has been a lot to cover in that time. I wanted to feel secure in the major transition of getting back to work, doing my job well, and staying connected with my wife and young son before I got back into […]
Now that I am further into my recovery, I finally feel that I am in a good enough place to write about one of the larger hurdles in the process; Steroids. I know most would immediately think of a muscular baseball player (i.e. A-Rod), and not someone who is bouncing back from neurosurgery. However, they […]
Happy to report back that the “Post Turkey Day Tumor Takeout” was a success on many levels. I am back at home with my family, after a three night stay at Mass. General Hospital. The fact that I am writing again is first and foremost something to be grateful for. Brain surgery is a scary […]
I am two days away from surgery. As to be expected, I have run the gamut in terms of emotions in the last few weeks. Mostly I am feeling anxious to just close this chapter of the journey and move on to the “recovery” phase. I would be lying if I said my mind did […]
Just a quick look at the intruder we now call Arnold. The real reason it needs to be addressed sooner rather than later is that it is growing into the brain-stem, and placing pressure there (not a good thing long term). This can be seen in the MRI image towards the upper-left side of the tumor. I […]
I’ve mentioned the topic of message boards and medical forums in previous posts. After a recent diagnosis of a brain tumor, or any other serious illness, the internet is typically the first place we turn to for information. As I’ve stated before, it is entirely necessary to be extremely well-informed about your medical situation and […]
Speaking with others about your tumor can be pretty daunting in and of itself. To be honest, more than anything I think I hate telling others about Arnold (What I’ve named it). I feel guilty for having to drop negative news on others, and seeing them struggle to know what to say is interesting to […]