Speaking with others about your tumor can be pretty daunting in and of itself. To be honest, more than anything I think I hate telling others about Arnold (What I’ve named it). I feel guilty for having to drop negative news on others, and seeing them struggle to know what to say is interesting to say the least.
Due to this fact,I don’t always find it useful to dwell on it with friends. However, as surgery is getting closer on the calendar, I do find that I would love to have someone to talk to about what to expect. More specifically, someone who has gone through the type of surgery I am facing this November or as I’m calling it; my “Post Turkey Day Tumor Takeout”. Post Turkey Day Tumor Takeout
That is where I was lucky to be introduced to “James in NYC” via a mutual friend. James was extremely generous of his time, speaking to me for over an hour during his workday. That alone is something I will always be thankful for.
What was more amazing from the time I spoke with James is that I felt a big weight lifted in just speaking with someone who beat their tumor, and is now four years later living a full and happy life. James also was completely “real” and honest about what was tough for him after his brain surgery. Not just for him, but how his wife and family struggled during his recovery (Something that everyone should expect).
He also walked me through some specifics to be prepared for; such as steroids and their impact on your body and mind, different items to have on hand, and all sorts of things to expect (I hope to post more specifics on “Advice Lists” after successful surgery).
James doesn’t know this yet, but I’ve dubbed him my “Surgery Sensei” due to his sage advice. It is important again to remember that no matter what you are dealing with, more than likely there are countless others in the world that have climbed the same mountain themselves. Finding people like James who are so eager to offer help is always refreshing.
My hope is that this blog may help someone else preparing for brain surgery, as James did for me. I also hope that my son Odin can see the value in “paying it forward” and helping others. No matter how bleak the situation, you are never truly alone and there are people who will help.
Stay appreciative for the good that you do have, and do not dwell in what is not “perfect” in your life. And if you find yourself preparing to have your brain operated on, try to find your Surgery Sensei.